![]() ![]() Mini genes 2c : the sticking together of small coding ‘pieces’ of the gene to make a mini-gene-2c was disappointing at first, but after a few months delay and several attempts, the researcher succeeded in this! At the same time, another researcher was developing an innovative tool with which predictions can be made with the help of the computer whether a protein will or will not be functional. Which company wants to take part in the pre-clinical phase in order to lift the study to the next level? Read more …. Researchers are talking about further cooperation with companies. Sometimes big steps are made in one year, but sometimes there also are setbacks to cope with. The board was given a presentation and a tour for each study. Because of the renewal of the board and also in view of the major financial contribution that the foundation makes to scientific research, the board went to visit the researchers in the Radboudumc. The board received a progress report with respect to all ongoing studies (co-)financed by the foundation. Mayor Marcouch presented the decoration during the rain of titles at the town hall of Arnhem. As chairwoman and driving force behind the Stichting Ushersyndroom she is of invaluable for the Usher patients group. King Willem-Alexander appointed Ivonne Bressers (56) Knight of the Order of Orange Nassau. Ivonne Bressers appointed Knight of the Order of Orange Nassau ![]() We will present this plan early in the year 2023. After a year of interviews, away days, on-line meetings and many discussions, we are now busy developing a Strategic Plan. The Stichting Ushersyndroom wants a ‘moon landing’ in 2030. We have the moonshot “A treatment for Usher Syndrome in 2025!”, but we are looking further ahead. Where are we now and where do we want to go? And how do we expect to get there? After a short familiarisation period the board started with the development of a Strategic Plan. Johan Driessen joined the board as a member and was given the fund-raising portfolio. The year started with a change in the board and expansion of the board: Diede Heijkoop took over the function of secretary from Annouk van Nunen. We will announce the two funded studies from the Moon Rocket Grant and another new research project in early 2023. The first 2 new studies that we will fund have already been announced at the end of December 2022. Thanks to the many donations and gifts, we can finance several new (inter)national research projects. ![]() We collected almost half a million euro of donations in one year! Thanks to all contributors and thanks to you! The special milestone of 1 million gave everyone wings. This has enabled us to finance a number of scientific studies. A huge and almost magical amount of money! Thanks to the many donations, actions and events we reached this amount six years after the first start of the campaigns. One year ago the Usher Syndrome Foundation announced its reaching the milestone of 1 million euro of donations. ![]()
0 Comments
Leave a Reply. |
AuthorWrite something about yourself. No need to be fancy, just an overview. ArchivesCategories |